Murphy was born on September 7th, 2012. At the time, there was no indication of his congenital heart defects, but as time went on it became apparent that something was not right. On February 14th, 2013 (Valentine's Day) we learned just what was going on. Murphy had a rare and often lethal congenital heart defect called Pulmonary Vein Stenosis. This has caused other issues including pulmonary hypertension, chronic lung disease and failure to thrive (meaning he does not gain weight as he should.) Murphy also has GERD and hearing loss. At this time, Murphy has undergone 4 cardiac caths with angioplasty to dilate his pulmonary veins which kept him alive, had a Nissen Fundoplication with a G-tube and on July 2nd 2013 had his bilateral lung transplant! Murphy remains in the Cardiac Intensive Care Unit at The Children's Hospital of Philadelphia right now. We are waiting for him to take his first unassisted breath and begin his new PVS free life!!! There are many challenges associated with transplant and there are many battles yet to face, but Murphy now has a chance to live his life.
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